A RHYL pub has pulled together to support a baby girl with a rare condition which has left her with just weeks to live.

Kaila Leigh Narciso was born with Edwards Syndrome. Also known as trisomy 18, the condition is a rare but serious genetic condition that causes a wide range of severe medical problems.

The Barrell, on Water Street, will be supporting the Meliden baby, who is just three weeks old, and her family by hosting a fundraiser this Friday at 4pm. Staff at the pub will donate their wages, hold sponsored waxes and head shaves as well as a raffle.

Kaila is the daughter of former resident DJ at the pub, self-employed Tjay Narciso and Katie Roy, originally of Rhyl, who is a bank nurse with Betsi Cadwaladr University Health Board (BCUHB).

The couple are currently without income as they devote their time to Kaila.

Katie, who has four-year-old son David, said: "When I was tested at 12 weeks, I was told I had only a one in 1000 chance of Kaila being born with a genetic disorder. When she was born, her right ear hadn’t fully grown and she had an index finger that wouldn’t open properly - I started to worry she might have Down's Syndrome.

"I started to think she was ok until we were told she had the condition and that it was incompatible with life. I'd never heard of Trisomy 18 before Kaila was diagnosed.

"There are so many people and businesses who are giving us support. It just goes to show that Rhyl really is like one big family."

Kaila Leigh was induced on Saturday, February 10 at just 3lbs 11oz after a difficult pregnancy for Katie.

Following surgery, Kaila Leigh was diagnosed a week later with Edward's Syndrome.

The condition is caused by a third Chromosome 18 which has only a one percent chance of survival past the age of 10.

The family are currently living in Claire House Hospice, in Bebbington on the Wirral, so they can spend as much time as possible making memories with Kaila Leigh.

Katie added: “We’re getting to do the things we wanted to do with Kaila. We’ve made copies of her foot prints and hand prints and she's had plenty of family coming to meet her.

"We’ve taken Kaila for her first swim in the hospice, where a nurse held an oxygen canister that went into the water so Kaila could breathe."

The family are trying to arrange outings for Kaila - trips to Chester Zoo and Blue Planet. A meeting took place yesterday to discuss bringing her home to Meliden for her last few weeks.

Katie said: "I really wanted her to see the nursery that she would of had and how we painted it especially for her."

There is a crowdfunding campaign open to support the family, donations can be made at justgiving.com/crowdfunding/katie-howard-1.