A CHARITY founded in Rhyl is raising the profile of a rare disorder tomorrow.

The UK Infantile Spasms Trust is holding a fun day from 11am at Rhyl's Marine Lake to raise funds and awareness.

The charity was founded just last year by the mothers of children with the disorder, which causes a constant and chaotic brainwave which can lead to brain damage or causes a child to lose the skills they have developed, offers support to families living.

Jade Bamber, who co-founded the charity after her two year old daughter Olivia was diagnosed with the disorder, said: "Anyone asking about this charity and learning what infantile spasms is can only be s good thing.

"It's rare that someone you know will end up suffering with it but it was so scary when Olivia was having these seizures and we had never heard or seen anything about the condition.

"When she first started having them, they were so subtle you never would have thought it was a seizure - but once you know what it looks like it's hard to forget.

"If spasms are stopped quickly then they do have a better chance at a good development. Olivia's development delay is quite severe but she does also have a chromosome disorder known as 'Partial Trisomy 18' that is also causing her to have delays in all areas of her development as Olivia was delayed before she started having spasms."

"It's nice to have people to speak to that know what you are going through."

And research suggests that the earlier you catch the seizures the less damage there will be done.

Ms Bamber will raise funds with a sponsored walk, as well as a tombola stall, raffle, hair chalk art, glitter tattoos, nail painting and face painting.

Activities for children will include a bouncy castle, bouncy slide and hook a duck. Families are also invited to bring a picnic.

Ms Bamber added: "Despite being a new charity we've already raised a great amount in our first year, and have even been able to offer some grants to some parents to help towards equipment.

The charity runs a Facebook support group offering advice for parents with children diagnosed with the disorder.