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Abergele family to raise funds for toddler battling kidney failure

Published date: 05 March 2014 |
Published by: Stephanie Price
Read more articles by Stephanie Price


 

TINY Louise Spinks is battling a rare form of cancer and kidney failure at just 14 months old.

The Abergele toddler, who has been diagnosed with a host of conditions, has nearly lost her life twice and will have to undergo treatment at Alder Hey Children’s Hospital in Liverpool four days a week for the next two years.

Now her parents Bethan and Chris, both 26, want to raise funds for a kidney dialysis machine for the hospital.

Bethan said: “Louise has now completed chemotherapy and is in remission from the cancer.

“She will have to undergo kidney dialysis for the next two years so she can be well enough to have a transplant.

“She will have to do this for four days a week in Alder Hey hospital. We drive her up every time, there was one point when we didn’t leave for five months.”

Louise suffers from Denys-Drash syndrome, which resulted in stage 3 intermediate risk right wilms tumour, and congenital nephrotic syndrome, both conditions affecting the kidneys.

She developed post operative chylous ascites, which is a fat leak into the abdomen, causing her to nearly loose her life twice, as well as developing Hypoadrenalism, which is the lack of ability to produce hormones from her glands.

Bethan, who had to quit her job as a front of house manager for a chain of four star hotels to look after Louise, said: “Louise posed no symptoms of being unwell.

“It was only discovered as I found a lump on her abdomen and saw my GP. My GP confirmed a mass and sent me to Glan Clwyd Hospital for tests who confirmed a tumour.

“On admission to Alder Hey the same night it was reported the tumour was huge. If the tumour hadn’t grown we would never have discovered her underlying condition until it was too late.”

The couple will be raising money through events such as the Conway Marathon, the Leeds Marathon, the Tough Mudder Challenge, bungee jumping and parachuting.
Bethan said: “We want to buy kidney dialysis machines for the hospital. We have nearly lost Louise twice.

“Louise’s little brother Taylor, who is six is really good with her, he will cheer her up.

“He goes to T Gwynn Jones in Old Colwyn and has not missed one day of school.”
She added: “My husband goes to the gym every night. He’s doing tough mudder and the marathons with my brothers.

“I’m doing a parachute jump and friends are hosting charity cricket and football matches in Stockport for us. We also have sponsored walks and someone donating all their wages every month to us. Someone has even asked if they can do a sponsored weight loss. Ideally we want as many donations and local business to donate or hold events for us.”

If you would like to help Bethan and Chris with their fundraising you can contact them on 07807096673.

For more news from across the region visit newsnorthwales.co.uk

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