A RHYL couple are hoping to raise awareness of a rare form of meningitis, they claim even doctors don’t know enough about.
Grace Crowther was diagnosed with pneumococcal septicaemia meningitis when she was just four months old after developing a purple rash on her legs.
Parents Jade Jones, 23, and Paul Crowther, 29, called for an ambulance but were left feeling frustrated when they were told their little girl was suffering from a viral infection and not the dangerous illness.
Jade said: “We did the glass test and the rash didn’t disappear. The paramedics said that if it was meningitis it would spread like wildfire. Suddenly, In a click of a finger, she went floppy and we rushed to hospital.”
On arrival at Glan Clwyd Hospital, Jade faced a room full of doctors waiting to resusciate Grace, she said: “They needed to stop her organs from failing.
"Grace screamed so much that she knocked herself out. Eventually, the doctors managed to get antibiotics into her body and she was moved to an isolation room on a ward
.Martin, the paramedic, stayed with her untill she went to the ward. He went beyond his duty.”
Jade said she was told her daughter was fighting a viral infection, but she couldn’t help thinking that it was something more sinister.
“On the fourth morning, they said I could take her home, but I didn’t feel comfortable; she wasn’t herself,” Jade said.
“Twenty minutes later, the lab phoned to say that they had found a low level of pneumococcal. When I asked exactly what she had, the doctor said pneumonia and meningitis which is pneumococcal.”
Jade said her partner’s brothers had suffered a rare strain of meningitis when they were babies, triggering her suspicion. “When Grace woke up after all the trauma, she had her hands across her heart and she smiled. I just want to protect her and raise awareness.”
A spokesperson for Betsi Cadwaladr University Health Board said: “Due to patient confidentiality we are unable to comment on individual cases. Septicaemia is a serious infection of the blood which can be caused by many different organisms including bacteria and viruses but it is not a hereditary condition.”