ALBERT Wirth suffers from a rare blood disorder which has left him so susceptible to bleeding – even the slightest knock could prove fatal.
The 60-year-old, known as Bert, suffers with Evans Syndrome, a autoimmune condition meaning the body makes antibodies that destroy the red blood cells, platelet and white blood cells.
An awareness event is being held for Bert, of Abergele, who since being diagnosed in 2009 has had five mini-strokes, a bleed on the brain and a platelet rash; blood blisters on the skin.
Wife Amanda, 46 and children, Callum, 14, and Sarah, 17, have spent years researching the syndrome and have set up a Facebook page, Evans Syndrome UK, and are hoping to bring other sufferers together to share their experiences.
Mrs Wirth said: “Bert went for a B12 injections to treat a vitamin deficiency but his leg started to swell after a few months. A blood test revealed that his platelet levels in his blood were dangerously low. An average platelet count is between 150,000-400,000, he sometimes lives on zero.”
Mrs Wirth said she felt the syndrome was ‘worse that cancer’ but added that her husband remained in good spirits.
“The kids have accepted that their dad is going to die .It may not be from the Evans syndrome, but it might be. There is nothing. There is no cure and that is the most frustrating thing.
“We have spoken to around 20 people that suffer with the disorder and everyone has different symptoms. We want to get Evans into the public eye.”
Bert Wirth added: “The truth is no-one knows too much about what triggers the disease. At times my platelet levels have been close to zero and when my nose bleeds the blood just oozes out.
“There are times when I get down and grumpy with the kids. It is the little things like not being able to take them out.
“I like to have a laugh at life. While I know this has been a nightmare, not just for me but the family, I am trying really hard to stay positive.”
The Evans Syndrome Awareness event will take place at Sun Valley Holiday Park, Rhuddlan, on Thursday, September 5 at 7pm.
The event will be a race night and will feature entertainment from singer Chantal Lappin, singers and dancers and there will also be a tombola, raffle and face painting.
Adults £2, under 16s are free.
For more information visit: www.facebook.com/evanssyndromeuk or call 07595702010.